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Improving Access to and Equity of Care for People with Serious Illness: A Workshop

National Academies of Science, Engineering, and Medicine
April 4, 2019 @ 8:00 am - 5:30 pm
The Keck Center of the National Academies + Google Map

The workshop will feature invited presentations and panel discussions on topics that may include:

  • Barriers that impede access to care for serious illness (e.g., advance care planning, palliative care, and hospice) among vulnerable populations and strategies to address those barriers 
  • Strategies to build trust and effectively engage patients, families, and caregivers in diverse cultural, ethnic, racial and socioeconomic environments, in order to communicate with patients and families in a culturally competent manner regarding expectations and values related to end-of-life care, and to ensure that treatment is aligned with preferences
  • Approaches to enhancing the diversity of the workforce providing care to people with serious illness
  • Models of care delivery that currently serve vulnerable populations with serious illness, including public-private partnerships and community-level interventions such as use of community health coaches for peer-to-peer interventions, and partnering with faith-based organizations
  • Research gaps and key questions for further research

While the workshop is not open to the public, you can follow the conversation on twitter:  #SeriousIllnessCareNASEM


  Session 4, 

2:45 pm

A Policy Agenda to Improve Access to Care and Achieve Health Equity for People with Serious Illness

Moderator: Sarah Downer, JD, Associate Director, Whole Person Care and Clinical Instructor on Law, Health Law and Policy Clinic, Harvard Law School


  • Diane Rowland, ScD, Executive Vice President, The Henry J. Kaiser Family Foundation
  • Andy Slavitt, MBA, Founder and General Partner, Town Hall Ventures, Former Acting Administrator, Centers for Medicare and Medicaid Services
  • Lori Bishop, MHA, BSN, RN, CHPN, Vice President of Palliative and Advanced Care, National Hospice and Palliative Care Organization



The Keck Center of the National Academies
500 Fifth Street, NW
Washington, DC 20001 United States
+ Google Map

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